Thank you for showing interest in our study
Study Title: A Psychometric Evaluation of the Preparedness for Employment Scale for people with Personality Disorders (PES-PD)
Please scroll down to read the participant information page before you take part in our study. If there is anything you are unclear about or if have any questions, you are welcome to contact the research team.
Participant Information Page
Who are we looking for to participate?
As you can see from the study title this questionnaire is for people with a personality disorder. However, in order for us to understand how well the scale works, we would like people from different backgrounds to complete it. This means we are not only looking for people with characteristics similar to people with personality disorders, but also people without personality disorder characteristics who are seeking employment, are employed or are unemployed.
Who we are
We are the EMPOWER Research Team, funded by the National Institute for Health Research (NIHR). Our aim is to develop and evaluate a new intervention; Dialectical Behavioural Therapy-Skills for Employment (DBT-SE). EMPOWER intends to increase wellbeing and employment for people with a personality disorder and people with characteristics consistent with people with personality disorder.
Purpose of this study
One way of helping to increase wellbeing and employment is to identify areas in which individuals may require extra support. In order to achieve this, we have devised a questionnaire; the Preparedness for Employment Scale for people with Personality Disorders (PES-PD). We want to find out whether the PES-PD has good psychometric properties. In other words, whether the questionnaire measures what it is supposed to measure (i.e. one’s preparedness for getting and keeping employment). We hope the PES-PD will:
i) Help people with a personality disorder or people who have characteristics consistent with people with a personality disorder to make decisions about when to enter employment.
ii) Help clinicians/employment staff to identify what type of support that these people may need in order to seek, gain and keep employment.
iii) Allow us to measure the outcome of interventions designed to help people gain and retain employment.
Do I have to take part?
No. This study is voluntary. If you decide that you would like to take part and you complete the online questionnaires you are letting us know that you are giving consent to take part. You are however free to stop completing the questionnaires at any time.
Unfortunately, you cannot take part if have participated in previous focus groups related to this study, or have completed previous versions of this questionnaire, or taken part in the previous pilot study. Doing so may influence the results of the study.
Who will know you are taking part in the study?
None of the questionnaires will require your personal information (e.g. your name) therefore, no one will know you are taking part in the study. All data will be stored in accordance with local NELFT and national NIHR information governance policies. Furthermore, in accordance with current NELFT Records Management Policy, the study will keep the data for a period of 20 years in the secure NHS research archiving system.
The study will conduct all activities in accordance with the Data Protection Act 1998 and NELFT Data Protection Policy. Access to the data is restricted and only members of the research team will have access to it.
Can I withdraw my data?
As personal information that can identify you is not required to complete the questionnaires, once you have submitted the online questionnaires, the study will not be able to withdraw your data (as we have no means to trace you to the completed packs).
What will happen if you do choose to take part in the study?
If after reading this information page and feel like you have had enough time to consider the study, you decide that you wish to take part in the study, please scroll to the bottom of the page where it says "Want to complete the questionnaires?" and click "Let's go!".
The website will then redirect you to ask you to complete an informed consent statement page, before you go on to complete these three questionnaires as part of the study:
The Standardised Assessment of Personality – Abbreviated Scale (SAPAS);
The Preparedness for Employment Scale for people with Personality Disorders (PES-PD) and;
A demographics form
The online questionnaires will take approximately 15 minutes to complete. Once you have completed the questionnaires, the website will redirect you to a charity donation page where the study will be able to donate £1 on your behalf to your chosen charity.
The charity options are: Young Minds: Child & Adolescent Mental Health, Mental Health Foundation, or Rethink.
What are the possible benefits of taking part in the study?
By taking part we hope that you will gain helpful insight into your feelings and thoughts about employment which you may find useful. You may also find it helpful to know the information gathered will better inform the development of the questionnaire (PES-PD), which will subsequently help clinicians and people in their planning of their employment support. You may also feel you have positively contributed to the community by donating £1 to your chosen charity.
What are the possible disadvantages of taking part in the study?
The anonymised results of the psychometric evaluation of the PES-PD will be presented in a doctoral thesis, will be published in a scientific journal, and presented at national or international conferences. Once fully developed, the scale will be given to NHS Trusts across the UK.
What will happen to the results of the research study?
Leng Song will present the anonymised results of the psychometric evaluation of the PES-PD in a doctoral thesis, which will be published in a scientific journal and presented at national or international conferences. Once the scale is fully developed, it will be given to NHS Trusts across the UK.
EMPOWER: The Enabling and Motivating People in Occupation, Wellbeing, Education, and Responsibility study is funded and reviewed by the National Institute for Health Research (NIHR) Programme Grant for Applied Research (RP-PG-1212-20011). The [insert REC name] has granted the study ethical approval.
If you wish to contact to discuss any of the information further, then please contact us on the details below:
Principle Investigator: Leng Song
Programme Manager: Dr Anna Cattrell
Telephone: 0300 555 1213